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Enjoy the story of my sad excuse for a doctor!!!
Hey, all of you! If you visit my post history, you’ll see my past rant about my TERRIBLE sleep doc!
Well, she struck again! I’m going to tell the story from the beginning for the newbies – it’s a long one, but trust me, it’s entertainingly engaging!
Backstory: 16F has struggled with insomnia since age 7 and has been having narcolepsy symptoms for about 1-2 years now. I’m not overweight or anything. I’m also taking Lexapro and gabapentin for anxiety/depression.
So around the beginning of the school year, my sleep issues got astronomically worse. I started a new (tough) school, combined with online coronavirus madness – it’s just been a mess.
My mom has had insomnia/narcolepsy for years and years and got a sleep study done a bit ago, so she took me to her doctor (like mother, like daughter, am I right?).
The most significant issue was my grades – I went to a very rigorous school. I was beginning to fail classes, which had never happened before. I’m a very type-A kind of student.
My first appointment was in November. I told her my history and all that on the telehealth, and I didn’t negatively affect her.
I mustn’t be officially diagnosed with narcolepsy because I CANNOT do a sleep study (going off my antidepressants for two weeks would be detrimental and unsafe for me.
It’s not an option until I’m older and more emotionally stable. I made this explicitly clear.
However, we’re all sure I have it based on history and my mom’s issues.
At the end of the app, she prescribed me 25mg of Armodafinil.
The Armodafinil was a life changer. My grades went up; I didn’t take naps, I had a great sleep schedule. However, around February, it just decided to stop working.
I took more and more out of desperation until 200mg. She did not schedule a follow-up appointment until MARCH.
She gave me pills and didn’t ask questions for almost four months. I was desperate. Even 200mg stopped working. My grades and motivation were failing.
I waited so patiently for the March appointment. I was hopeful she’d help me, get me new meds, SOMETHING.
Finally, the day comes, and if you go to my post history, you’ll see what happened. She was insulting and condescending. No help.
ALMOST left the appointment without medication change until I finally cried and BEGGED her for a new prescription.
Left incredibly angry, hopeless, and with a new drug Modafinil. And a follow-up app for MAY (two months out).
I was pretty much done with this doctor, but my mom wanted to wait and see since she had liked her previously, and there weren’t many options for sleep specialists in my city.
Here’s where it gets good. So, the new prescription wouldn’t go through to the pharmacy. My mom called the doctor, pharmacy, and insurance people several times.
Every time, they referred us over to the next person.
After TWO WEEKS, I STILL DIDN’T HAVE MY MEDS. TWO WEEKS MINDLESS.
I CANNOT STAY AWAKE WITHOUT THEM. My mom texted (through the portal thing) and called the doctor several times – either they straight up didn’t answer, referred us to the insurance people, or even SAID THEY COULDN’T ANSWER ANY QUESTIONS ABOUT MY MEDS TO MY MOM BECAUSE SHE WASN’T THE PATIENT, EVEN THOUGH I’M A MINOR.
I’M SIXTEEN. THAT’S BULLSHIT.
FINALLY, after TWO WEEKS, my mom called the doctor while I was in the car.
They said I couldn’t get the prescription because they can’t give Modafinil to minors unless they have a sleep study.
KEEP IN MIND, the only thing I was ABLE to say between my doc scolding me about how my sleep issues are all because of my phone was that I CANNOT DO A SLEEP STUDY.
That was said MANY MANY times. She prescribed me a medication I could not take because she didn’t listen to me or wanted me to suffer. I have never been angrier. Why would you become a doctor not to help people?
To ignore people? To leave them without medication for two weeks or follow-up appointments for MONTHS?
THEN they dared to say, “OK, what’s a good time to set up an appointment to discuss alternative medications?” no. Haha. Nope.
That appointment was two weeks ago. I said I was getting a new doctor and hung up. Bullshit. I have never been more enraged;
I was shaking. So now you can set up an appointment ASAP when you can’t for four months? Funny.
I feel hopeless. My mom told me she had experienced so many doctors like this regarding narcolepsy. No one seems to take it seriously.
I am preparing myself for a life of frustration and exhaustion. I hope you found this story entertaining.
Hopefully, it is not relatable.
New app with a new doctor on Wednesday. Wish me luck. My hopes are not high.
Reference
- https://www.reddit.com/r/Narcolepsy/comments/mqyrtu/enjoy_the_story_of_my_sad_excuse_for_a_doctor/
- https://buymoda.net/faq/
